Monday, May 5, 2008

another late night

Dad spent tonight with Mom.  He reports that nothing has changed, although he requested that we be included in rounds tomorrow and also have a meeting with Dr. Cach (neurosurg).  After her tests today they didn't put her on quite so much sedative, so she does flail a bit when she's awake.  Her eyebrows are the most expressive part, sort of knotting in confusion sometimes.  I can't help but feel like she is asking for help and we can't give her what she wants--the arm untied and the tube out and the halo off and a bowl of mint chocolate chip ice cream.  What a relief it will be when the tube is out.  She gave the respiratory therapist a run for her money today by pushing the tube out the side of her mouth.  She didn't stop until the RT untaped it and retaped it where Mom had pushed it.  

Amy will be with my mom tomorrow morning til lunch time.  If Mom does well on her weaning tests in the morning, it could be an exciting day.  If there is big news, I will try to make my posts shorter and more frequent.

I have had a request to explain how we are keeping two toddlers happy in a hotel room...well they are pretty much in heaven.  They have no chores, no bedtimes, no rules, sleep in the same room as mom, eat chocolate muffins in bed watching cartoons every morning, swim in the pool at least twice a day, get everything they could possibly want from Grandpa (and Dad before he left, like pool noodles), fill their sippy cups straight from the ice machine, ride an elevator 15 times a day....  hmmm...  how could they NOT be happy?  Before Barri left he made my dad promise that he would take the kids to the go-kart place sometime.  I asked them tonight if they wanted to go play in the park tomorrow and Anna pipes up "go-cars".  Now that it's just mom, there are some new rules.  No whacking pool noodles in the hotel room.  No touching Gigi's computer.  Fruit snacks do not constitute an entire meal.  etc.

6 comments:

Valerie said...

Hi you guys,

I was so sorry to hear about the accident & how badly hurt Janet is. And I am so sorry it has taken me so long to write to you. I was out of town for a few days when Uncle Dick called on Sat. & then Tim called me. I didn't know how to reach you at that point but I started praying for all of you, & especially Janet, right away. I think of you often throughout each day & pray for you whenever I think of you. It is kind of weird because I was just thinking about Janet & remembering how much I looked up to her when I was a little girl. We had some mighty fun times or at least I did . She probably thought I was a bit of a pest.
I am so thankful that you are all able to be there for Janet & for each other & to advocate for her. Never feel bad about asking the millionth question on her behalf. She is blessed to have you all right there with her loving her & making sure she gets the best care possible. I am sure it is exhausting & scary & frustrating at times but hang in there. Your being there for her & each other is so critical for all of you.
Thank you for the updates. It is helpful to know what is going on.
I have been busy advocating for my mom & spending every day with her since she broke her hip 5 weeks ago. The fun part of the story is that she broke it while dancing while watching Dancing with the Stars on t.v. She has had surgery & has been in & out of the hospital. It has been hard on her & has been a bit of a fight to get her the care she has needed but it has been so worth it. She is on the mend. Since she has Alzheimer's much of our connection is expressed through being with her, touch, speaking to her, loving her & caring for her. This time has been a testimony to me of the deep bonds & connecting that go beyond normal conversation, discussion, etc. So I know that the time, love & care through talking, touch or whatever you are giving to Janet means so much to her whether she can communicate that right now or not.
I will continue to pray for all of you & especially for Janet's recovery, the wisdom of the doctor's & peace as you walk through this difficult time together. Thanks again for sharing your journey & your hearts with all of us who love you.
God bless you.
I love you, Valerie

Leslie said...

Okay, I forgot my password and had to start all over. More later.
ANd it was my name. How hard is that....but was it my full name or was it an initial? Not enough coffee yet.
Leslie

Anonymous said...

Thanks for the updates. We are checking them often. Please let us know if there is anything we can do to help via long distance. John and Grace

Leslie said...

Okay, I'm back. I wrote my password down this time.

I hope Janet has a good day today. Hugs and fingerhugs all around.

Woke up early today to read my trial transcript. The PD went on for 30 pages in his closing...blah, blah, blah. Actually, it was pretty good but way too long!

Jimmy is currently taking a "chowba" which is a shower and bath combined. Personally, I think it should be called a "showba" but he is not persuaded by logic. So "chowba" it is.

Emily had a violin concert last night at her school. She was way in the back so we only saw her occasionally when her head popped up. Glad violin is over, at least I think it is. There was way too much complaining about practicing. AND apparently it was all my idea for her to take violin. Yes, I got all excited about it and signed her up. She never really wanted to do it. It was all me. Does that seem credible to you???

Tonight we have Taekwon Do. Our whole family takes classes together. Some of us are better than others. Jimmy has been working with me on my "reverse block walking stance"......at least I think that is what it's called. He and EMily are really good at remember all the Korean words we have to know. I have to see the word in order to know/remember how to pronouce it. Okay, I have a correction, I've been working on my "reverse forearm low block walking stance" according to Jimmy.

I'm going to have to practice before I go to class tonight b/c one of the instructors will be going over my requirements sheet for the upcoming test with me. And it is very embarassing when you don't know how to do anything. Like the last time an instructor went over a requirements sheet. Anyway, Jimmy is very good at showing me how to do all the moves. Somehow even though we are in the class together both Jimmy and Emily retain more than I do.

After Taekwon Do class, I have a triathlon class. Tonight we will be swimming so it will be good for my ego. This is can do!!

Got to get Jimmy out of his "chowba". I also have to return/exchange Emily's dress she wore last night. It's this pale yellow sundress. She tried it on once, and then wore it last night. I didn't notice until we cut the tags off that it has this black magic marker circular mark on the skirt. And she had to wear it b/c there was time to change. Now, I wonder if the store clerk is going to believe me? We will see.

Have a good day. I'll be thinking of you.

Leslie

Anonymous said...

Good morning! Just checking up on Janet before starting my day. I had to laugh at the image of the RT and your mom having the "conversation" about where the tube should be placed. This seems to me to be a good thing--she is taking in what is going on around her and, as usual, is not shy about letting her feelings known. Way to go Janet! Keep the staff and doctors on their toes!

Today should be a better day. Anytime I take my mom to the Dr she gets feisty and, unfortunately, I am usually the object of her feistiness. Today, however, is actually a lovely day in Minnesota--blue skies, high about 55, slight breeze and we have nothing to do but enjoy the day and each other.

Tonight I am going to my knitting group with Pam. I don't have a project to work on, as after 15 hours of work over the past two weeks, I have a skein of lovely yarn that is short about 10 yards and a pair of empty needles. Oh well, I can always work on a new dishcloth pattern to practice the purl stitch. Simple knitting always helps relieve my stress-- I wonder if there is a charity that needs lots of handmade dishcloths?

Bob is still in Montreal, staying at Ruby Foo's. Such an interesting name that I am intrigued. He said he is going out on an adventure tomorrow--in search of the perfect smoked meat. I am not sure what that is, but Bob talks about it with the same passion that he talks about Fry's.

In case you guys don't know, you are doing a magnificent job. I am so impressed with you all.
Much love
Vickie

Christine said...

Hey all,
Today is my day off and that means lots of cleaning and housework. Yesterday was very long. I was called in early to groom more dogs because someone overslept. That meant I was wrestling dogs for eleven hours. Oh well there were some really charming ones there, like the two lhasa puppies (sooo cute.
Dad called and wants me to groom Buddy today (the dogs just don't stop coming)
Jon has school again tonight so I will be hanging out with the animal crew. I am trying to figure out what to cook mom for Mother's Day, perhaps something greek.
We all miss you guys so much. I check the blog everytime I have a minute.
By the way when Uncle B. takes the little ones to go cart can we get some picture?

Anyway, I love you guys and will check in later.

Christine